NURSES EMOTIONAL EXPERIENCES REGARDING PALLIATIVE CARE OF PEDIATRICS: A QUALITATIVE STUDY IN PUNJAB, PAKISTAN

Abstract

Background: Compassion fatigue is prevalent among medical staff treating children with life-threatening conditions, affecting their psychological well-being and job performance. This study aims to explore the emotional experiences of nurses working within a multidisciplinary pediatric palliative home care team.

Objective: To characterize the emotions and sentiments of nurses involved in pediatric palliative care, assessing both the positive and negative impacts of their work.

Methods: A qualitative case study design was employed, involving eighteen participants from a home-based interdisciplinary pediatric palliative care team. Data were collected through semi-structured interviews and field notes, followed by thematic analysis to identify underlying themes related to the nurses' emotional experiences.

Results: Two primary themes emerged from the analysis: (a) 'Improving Life,' highlighting how nurses find personal and professional fulfillment in their roles, valuing life more and gaining compassion satisfaction from assisting children and families; and (b) 'Negative Effects of Work,' which underscored the emotional burdens associated with caring for terminally ill children. These burdens include the risk of burnout and the profound impact of witnessing child suffering and death in hospital settings.

Conclusion: The study elucidates the dual emotional impact of pediatric palliative care on nurses. While the role offers significant personal satisfaction and a sense of purpose, it also poses substantial emotional challenges. Understanding these impacts can guide the development of strategies to support nurses' well-being and enhance the quality of care.