TRANSLATION AND VALIDATION OF POSITIVE MEANING IN CAREGIVING SCALE IN URDU LANGUAGE FOR MOTHERS OF CHILDREN WITH AUTISM SPECTRUM DISORDER

Authors

  • Fatima Salman University of the Punjab, Lahore, Pakistan. Author https://orcid.org/0000-0002-2361-2582
  • Tehreem Arshad University of the Punjab, Lahore, Pakistan. Author
  • Aisha Sitwat University of the Punjab, Lahore, Pakistan. Author

DOI:

https://doi.org/10.71000/xvp2bq10

Keywords:

Autism Spectrum Disorder, Caregivers, Cross-Cultural Validation, Mothers, Psychometrics, , Urdu Language, Validation Studies

Abstract

Background: Autism Spectrum Disorder (ASD) presents ongoing emotional and practical challenges for primary caregivers, especially mothers. While much focus has been placed on caregiver burden, recent research emphasizes the importance of assessing positive caregiving experiences such as personal growth, emotional resilience, and meaning in life. The Positive Meaning of Caregiving Scale (PMCGS) is a reliable instrument in Western contexts, yet a culturally adapted Urdu version has been lacking in Pakistan. Addressing this gap is crucial for inclusive mental health assessment and support.

Objective: To translate, culturally adapt, and validate the Positive Meaning of Caregiving Scale in Urdu for use among mothers of children with ASD in Pakistan.

Methods: This cross-sectional study involved 300 married mothers of children diagnosed with ASD within the past 12 months. The translation process followed the MAPI Institute’s linguistic validation guidelines, including forward and backward translation, pilot testing, and expert review. Internal consistency was evaluated using Cronbach’s alpha, and construct validity was examined via confirmatory factor analysis (CFA). Cross-language validation was conducted using Pearson product-moment correlation between English and Urdu versions.

Results: The Urdu version demonstrated excellent internal consistency (α = 0.97). The mean score was 32.40 (SD = 11.57), with scores ranging from 11 to 55. CFA indicated a strong model fit (CFI = 0.979, TLI = 0.973, NFI = 0.969), although RMSEA was 0.083. All items showed significant positive inter-item correlations, and cross-language correlations ranged from 0.12 to 0.83 (p < 0.05 to p < 0.01), indicating robust cross-linguistic reliability.

Conclusion: The Urdu-translated PMCGS is a psychometrically sound and culturally appropriate tool for measuring positive caregiving experiences among Urdu-speaking mothers of children with ASD, offering valuable implications for clinical practice and research in Pakistan.

Author Biographies

  • Fatima Salman, University of the Punjab, Lahore, Pakistan.

    PhD Scholar, Center for Clinical Psychology, University of the Punjab, Lahore, Pakistan.

  • Tehreem Arshad, University of the Punjab, Lahore, Pakistan.

    Assistant Professor, Center for Clinical Psychology, University of the Punjab, Lahore, Pakistan.

  • Aisha Sitwat, University of the Punjab, Lahore, Pakistan.

    Former Assistant Professor, Center for Clinical Psychology, University of the Punjab, Lahore, Pakistan.

References

Torralbas-Ortega J, Roca J, Coelho-Martinho R, Orozko Z, Sanromà-Ortiz M, Valls-Ibáñez V. Affectivity, sexuality, and autism spectrum disorder: qualitative analysis of the experiences of autistic young adults and their families. BMC Psychiatry. 2023;23(1):858.

Chien YL, Wu CS, Chang YC, Cheong ML, Yao TC, Tsai HJ. Associations between parental psychiatric disorders and autism spectrum disorder in the offspring. Autism Res. 2022;15(12):2409-19.

Oppenheim D, Koren-Karie N, Joels T, Hamburger L, Maccabi Y, Slonim M, et al. Attachment to fathers and mothers in preschoolers with an Autism Spectrum Disorder diagnosis. Attach Hum Dev. 2022;24(5):645-58.

Hampton S, Allison C, Aydin E, Baron-Cohen S, Holt R. Autistic mothers' perinatal well-being and parenting styles. Autism. 2022;26(7):1805-20.

Ault S, Breitenstein SM, Tucker S, Havercamp SM, Ford JL. Caregivers of Children with Autism Spectrum Disorder in Rural Areas: A Literature Review of Mental Health and Social Support. J Pediatr Nurs. 2021; 61:229-39.

Dira PMM, Machailo RJ, Scholtz S. Caregivers' voices: From the world of autism spectrum disorder. Curationis. 2024;47(1):e1-e11.

Arun P, Azad C, Kaur G, Sharma P. A Community-Based Study of Antenatal and Neonatal Risk Factors in Autism Spectrum Disorder. Prim Care Companion CNS Disord. 2023;25(2).

He Y, Wong A, Zhang Y, Lin J, Li H, Zhao B, et al. Effects of Mozart-Orff parent-child music therapy among mothers and their preschool children with autism spectrum disorder: A mixed-methods randomised controlled trial. BMC Pediatr. 2024;24(1):665.

MacDuffie KE, Estes AM, Peay HL, Pruett JR, Jr., Wilfond BS. The Ethics of Predicting Autism Spectrum Disorder in Infancy. J Am Acad Child Adolesc Psychiatry. 2021;60(8):942-5.

Arafa A, Mahmoud O, Salah H, Abdelmonem AA, Senosy S. Maternal and neonatal risk factors for autism spectrum disorder: A case-control study from Egypt. PLoS One. 2022;17(6): e0269803.

Sourander A, Silwal S, Surcel HM, Hinkka-Yli-Salomäki S, Upadhyaya S, McKeague IW, et al. Maternal Serum Vitamin B12 during Pregnancy and Offspring Autism Spectrum Disorder. Nutrients. 2023;15(8).

Hertz-Picciotto I, Korrick SA, Ladd-Acosta C, Karagas MR, Lyall K, Schmidt RJ, et al. Maternal tobacco smoking and offspring autism spectrum disorder or traits in ECHO cohorts. Autism Res. 2022;15(3):551-69.

Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: The role of affiliate stigma and psychosocial moderating variables. Research in developmental disabilities, 34(11), 4103-4114.

Evans K, Whitehouse AJO, D'Arcy E, Hayden-Evans M, Wallace K, Kuzminski R, et al. Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers. Int J Environ Res Public Health. 2022;19(23).

Mohamad Aun NS, Zakaria SM, Ahmad Badayai AR, Idris IB, Mohd Daud TI, Mohd Fazree SD. Quality of Life among Mothers of High Functioning Autism Spectrum Disorder (HFASD)Adolescents. Int J Environ Res Public Health. 2022;19(11).

Colombet C, Alcaraz C, de la Tribonnière X, Morsa M, Rattaz C, Baghdadli A. Self-reported needs of caregivers of people with Autism Spectrum Disorder. J Autism Dev Disord. 2023;53(7):2798-805.

Fisher AP, Lynch JD, Jacquez FM, Mitchell MJ, Kamimura-Nishimura KI, Wade SL. A systematic review examining caregivers' of color experiences with the diagnostic process of autism spectrum disorder. Autism. 2023;27(4):876-89.

Mazibuko, N., Shilubane, H., & Manganye, S. (2020). Caring for children diagnosed with autism spectrum disorder: Caregivers’ experiences. Africa Journal of Nursing and Midwifery, 22(2), 14-pages.

Nadeem, M. S., Murtaza, B. N., Al-Ghamdi, M. A., Ali, A., Zamzami, M. A., Khan, J. A., ... & Kazmi, I. (2021). Autism-a comprehensive array of prominent signs and symptoms. Current pharmaceutical design, 27(11), 1418-1433.

Restrepo, B., Enriquez, J., & Hansen, R. L. (2022). Signs and Symptoms of Autism Spectrum Disorder. Developmental-Behavioral Pediatrics E-Book, 431

Tathgur, M. K., & Kang, H. K. (2021). Challenges of the caregivers in managing a child with autism spectrum disorder—a qualitative analysis. Indian journal of psychological medicine, 43(5), 416-421.

C TP, Reisert H, Adesman A. Wandering behavior in children with autism spectrum disorder and other developmental disabilities. Curr Opin Pediatr. 2021;33(4):464-70.

Ijaz S, Rafaq F, Haider SI. Parent training for Autism Spectrum Disorder. J Pak Med Assoc. 2021;71(1(a)):31-6.

Downloads

Published

2025-07-19

How to Cite

1.
Salman F, Arshad T, Sitwat A. TRANSLATION AND VALIDATION OF POSITIVE MEANING IN CAREGIVING SCALE IN URDU LANGUAGE FOR MOTHERS OF CHILDREN WITH AUTISM SPECTRUM DISORDER. IJHR [Internet]. 2025 Jul. 19 [cited 2025 Sep. 25];3(4 (Health and Allied):245-53. Available from: https://insightsjhr.com/index.php/home/article/view/1141